Awake at the Bedside

Contemplative Teachings on Palliative and End-of-Life Care

Author: Koshin Paley Ellison,Matt Weingast

Publisher: Simon and Schuster

ISBN: 1614291195

Category: Family & Relationships

Page: 368

View: 4573

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This book isn’t about dying. It’s about life and what life has to teach us. It’s about caring and what giving care really means. In Awake at the Bedside, pioneers of palliative and end-of-life care as well as doctors, chaplains, caregivers and even poets offer wisdom that will challenge, uplift, comfort—and change the way we think about death. Equal parts instruction manual and spiritual testimony, it includes specific instructions and personal accounts to inspire, counsel, and teach. An indispensable resource for anyone involved in hospice work or caregiving of any kind. Contributors include Anyen Rinpoche, Coleman Barks, Craig D. Blinderman, Bhikkhu Bodhi, Joshua Bright, Ira Byock, Robert Chodo Campbell, Rafael Campo, Ajahn Chah, Ram Dass, Kirsten DeLeo, Issan Dorsey, Mark Doty, Norman Fischer, Nick Flynn, Gil Fronsdal, Joseph Goldstein, Shodo Harada Roshi, Tony Hoagland, Marie Howe, Fernando Kawai, Michael Kearney, Elisabeth Kubler-Ross, Stanley Kunitz, Stephen and Ondrea Levine, Judy Lief, Betsy MacGregor, Diane E. Meier, W. S. Merwin, Naomi Shihab Nye, Frank Ostaseski, Rachel Naomi Remen, Larry Rosenberg, Rumi, Cicely Saunders, Senryu, Jason Shinder, Derek Walcott, Radhule B. Weininger.

Awake at the Bedside

Contemplative Teachings on Palliative and End-of-Life Care

Author: Koshin Paley Ellison,Matt Weingast

Publisher: Simon and Schuster

ISBN: 161429142X

Category: Medical

Page: 300

View: 7057

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This book isn’t about dying. It’s about life and what life has to teach us. It’s about caring and what giving care really means. In Awake at the Bedside, pioneers of palliative and end-of-life care as well as doctors, chaplains, caregivers and even poets offer wisdom that will challenge, uplift, comfort—and change the way we think about death. Equal parts instruction manual and spiritual testimony, it includes specific instructions and personal accounts to inspire, counsel, and teach. An indispensable resource for anyone involved in hospice work or caregiving of any kind. Contributors include Anyen Rinpoche, Coleman Barks, Craig D. Blinderman, Bhikkhu Bodhi, Joshua Bright, Ira Byock, Robert Chodo Campbell, Rafael Campo, Ajahn Chah, Ram Dass, Kirsten DeLeo, Issan Dorsey, Mark Doty, Norman Fischer, Nick Flynn, Gil Fronsdal, Joseph Goldstein, Shodo Harada Roshi, Tony Hoagland, Marie Howe, Fernando Kawai, Michael Kearney, Elisabeth Kubler-Ross, Stanley Kunitz, Stephen and Ondrea Levine, Judy Lief, Betsy MacGregor, Diane E. Meier, W. S. Merwin, Naomi Shihab Nye, Frank Ostaseski, Rachel Naomi Remen, Larry Rosenberg, Rumi, Cicely Saunders, Senryu, Jason Shinder, Derek Walcott, Radhule B. Weininger.

Changing the Way We Die

Compassionate End of Life Care and The Hospice Movement

Author: Fran Smith

Publisher: Simon and Schuster

ISBN: 1936740605

Category: Health & Fitness

Page: 288

View: 5761

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There’s a quiet revolution happening in the way we die. More than 1.5 million Americans a year die in hospice care—nearly 44 percent of all deaths—and a vast industry has sprung up to meet the growing demand. Once viewed as a New Age indulgence, hospice is now a $14 billion business and one of the most successful segments in health care. Changing the Way We Die, by award-winning journalists Fran Smith and Sheila Himmel, is the first book to take a broad, penetrating look at the hospice landscape, through gripping stories of real patients, families, and doctors, as well as the corporate giants that increasingly own the market. Changing the Way We Die is a vital resource for anyone who wants to be prepared to face life’s most challenging and universal event. You will learn: — Hospice use is soaring, yet most people come too late to get the full benefits. — With the age tsunami, it becomes even more critical for families and patients to choose end-of-life care wisely. — Hospice at its best is much more than a way to relieve the suffering of dying. It is a way to live.

Buddhist Care for the Dying and Bereaved

Author: Jonathan S. Watts,Yoshiharu Tomatsu

Publisher: Simon and Schuster

ISBN: 1614290520

Category: Family & Relationships

Page: 312

View: 1171

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Buddhist understandings of death and practices surrounding death have been hallmarks of the tradition since its beginning. Over the last forty years, they have been an important part of the global revival of Buddhism, especially in the West—from the popularization of the Tibetan Book of the Dead to Zen poetry about death, to Theravadan meditation on the decaying body, to belief in the welcome of Amida Buddha on one's deathbed. Today there is a plethora of new titles by various authors on how to use Buddhist teachings and practices to face death and the dying of loved ones, yet these titles by and large focus on how an individual can prepare for death (their own or another's) as an inner journey. Relatively little is known, however, about the number of Buddhist-based initiatives for caring for the dying and bereaved through the development of trained professionals and the building of facilities that have mushroomed since the late 1980s. While a number of these initiatives have been created by high-profile Buddhist teachers, like Sogyal Rinpoche and Joan Halifax, who have written heart-moving books on death, their initiatives and others are not as highly publicized in the mass media. In this volume, we have culled some of the best and most inspired examples of Buddhist care for the dying and bereaved from all over the world, covering the entire Buddhist tradition with essays from the Theravada tradition in Thailand and Cambodia; the Tibetan tradition in the Rigpa Spiritual Care Program, which functions primarily in Europe and the United States; the East Asian Mahayana tradition in Taiwan; and the Lotus Sutra, Pure Land, and Zen traditions in both Japan and the United States. The Buddhist hospice movement marks a recovery of the ancient practices of Buddhism towards death and their application in new, modern conditions and societies. Many Buddhists today are drawing upon this long and deep tradition to find their own models for developing forms of Buddhist engagement that not only confront but also transform the many problems facing people dying in the world today.

The Helping Professional's Guide to End-of-Life Care

Practical Tools for Emotional, Social, and Spiritual Support for the Dying

Author: E. Alessandra Strada

Publisher: New Harbinger Publications

ISBN: 160882201X

Category: Psychology

Page: 264

View: 6584

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Nearly half of people at the end of life will receive hospice care, but few psychologists, nurses, physicians, chaplains, and hospice workers have been trained specifically to recognize and address the psychological, social, and emotional issues that may arise in patients who are dying. Patients in the midst of advanced terminal illness may experience a variety of distressing emotions, and may feel anxious, frightened, regretful, or desperate. This guide was created specifically to guide helping professionals of all kinds through the process of working through patients’ psychological issues to allow them peace and comfort in their final moments. The Helping Professional’s Guide to End-of-Life Care clarifies the spiritual and emotional care that patients need and presents an evidence-based approach integrating cognitive behavioral therapy (CBT), transpersonal psychotherapy, hypnosis, mindfulness, and guided imagery to help patients manage emotional distress at the end of life. Through case conceptualizations and detailed treatment planning guidance, readers learn to formulate comprehensive assessment and treatment plans for patients and gain skills that will help them manage the emotional intensity of this work. This secular, professional treatment model can be applied to patients of any religious or spiritual background. The book also addresses integrating the patient’s therapeutic team with the medical team, addressing the emotional needs of friends and family of the dying, crisis intervention for suicidal patients, working with clients on psychotropic medications, and how helping professionals can manage their own emotions to become more effective clinicians.

Being with Dying

Cultivating Compassion and Fearlessness in the Presence of Death

Author: Joan Halifax

Publisher: Shambhala Publications

ISBN: 9780834821743

Category: Family & Relationships

Page: 224

View: 7513

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The Buddhist approach to death can be of great benefit to people of all backgrounds—as has been demonstrated time and again in Joan Halifax’s decades of work with the dying and their caregivers. Inspired by traditional Buddhist teachings, her work is a source of wisdom for all those who are charged with a dying person’s care, facing their own death, or wishing to explore and contemplate the transformative power of the dying process. Her teachings affirm that we can open and contact our inner strength, and that we can help others who are suffering to do the same.

End of Life Care in the ICU

From Advanced Disease to Bereavement

Author: Graeme Rocker,Kathleen Puntillo,Élie Azoulay

Publisher: Oxford University Press

ISBN: 019923924X

Category: Medical

Page: 375

View: 1881

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This book highlights real clinical issues which need to be addressed if quality palliative care within ICUs is to be consistently delivered. It is presented in an easily accessible, bullet pointed style, and is illustrated with case histories from real-life patients, and drug tables.

Handbook of Palliative Care

Author: Christina Faull,Sharon de Caestecker,Alex Nicholson,Fraser Black

Publisher: John Wiley & Sons

ISBN: 1118426819

Category: Medical

Page: 392

View: 1318

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A Practical and Comprehensive Introduction to the Field of Palliative Medicine "This is not so much a handbook of palliative care as the handbook of palliative care." —Palliative Medicine The Third Edition of the BMA's 1999 Medical Book of the Year provides valuable insights into the complex issues that arise in the delivery of palliative care. It is an invaluable resource for anyone involved in palliative care no matter what the setting—be it hospital, hospice, or community. Handbook of Palliative Care, Third Edition provides the what, how, and why of palliative care, helping providers follow best practices developed by specialists and supported by available research. It handily combines clinical practice and theoretical concepts in a succinct format, making the latest knowledge easy to find and apply. The Third Edition provides: Comprehensive and authoritative information as well as thorough detail on how to apply it Guidance from UK and North American clinicians who are experts in their field Up-to-date overviews of medicine management and complementary medicine in palliative care Considerations of audit and ethical issues in palliative medicine New chapters tackling important issues like Choice, Equality, and Diversity; Dementia; and Advance Care Planning A thoroughly revised chapter on cancer complications including the latest on lymphoedema This Third Edition of Handbook of Palliative Care is the book for doctors, nurses, therapists, pharmacists, social workers, family members, and anyone involved with or providing palliative care. The First Edition was the winner of the 1999 BMA Medical Book of the Year Prize.

Enso House

Author: David Daiku Trowbridge

Publisher: Abiding Nowhere Press

ISBN: 0985496703

Category: Caregivers

Page: 254

View: 2356

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Enso House is a home for end-of-life care on Whidbey Island, in the Pacific Northwest. This book relates the journey of a group of people striving to create a community rooted in spiritual practice and focused on caring for people who are dying. In this setting, patients and caregivers are able to confront the realities of sickness, aging, and death. This is a story about spiritual openness-how seemingly miraculous outcomes spring from letting go of control and knowing. It is a story of community-neighbors who discover that in volunteering their talents, they receive even greater gifts than they give. It is the story of the life-giving power of death.

What Dying People Want

Lessons for Living from People Who Are Dying

Author: Dr. David Kuhl

Publisher: Anchor Canada

ISBN: 0307374971

Category: Self-Help

Page: 352

View: 3845

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An internationally renowned palliative care physician offers guidance on living with a terminal illness. Based on research funded by the Soros Foundation and extensive interviews with dying people. A profound and practical book about living with a terminal illness over a long period of time. It offers guidance, solace, and helpful strategies for people who are terminally ill, their families and caregivers. Facing death results in more fear and anxiety than any other human experience. Western medicine has accomplished a great deal in addressing physical pain and controlling symptoms for people with a terminal illness, but much slower progress has been made in understanding and alleviating psychological and spiritual distress. In What Dying People Want, Dr. David Kuhl begins to bridge that gap. He does so by addressing end-of-life realities — physical, psychological and spiritual — through his own experiences as a doctor and through the words and experiences of people who know that they are dying. He presents ways of addressing the pain, of finding new life in the process of dying and of understanding the inner reality of living with a terminal illness. He acknowledges the despair and recognizes the desire for hope and meaning. Dr. Kuhl also makes the provocative case that insensitive communication by doctors creates more suffering for patients than either the illness or the knowledge of impending death, and offers both the dying and their caregivers guidance on preventing painful interactions. He provides ways of speaking about difficult topics with physicians, family members, friends and those who have a terminal illness. “This book started with a research question: What is the daily experience of living with a terminal illness? How does that experience affect your sense of self, your relationship with others, and your understanding of the spiritual? Many of those I interviewed asked me to share what they had given me with others who would follow — those with a terminal illness as well as their friends and family members who would care for them and about them. They asked specifically that I write a book for a general audience, and not only for my colleagues in the medical profession. This is the book that grew out of that research.” — Dr. David Kuhl From the Hardcover edition.

At Home with Dying

A Zen Hospice Approach

Author: Merrill Collett

Publisher: Shambhala Publications

ISBN: 9781570625152

Category: Medical

Page: 240

View: 3009

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Most people would rather die at home, surrounded by familiar sights and cared for by our loved ones, than in a hospital. But most of us, too, would be overwhelmed, even frightened, at the prospect of having to provide such caregiving. Of the many books available about death and dying, this is the first to explain in detail how caring for a dying loved one can be a life-expanding experience when done mindfully and from the heart. At Home with Dying is a practical guide the physical, emotional, and spiritual skills needed to care for someone who is terminally ill, based on the principles that guide the Zen Hospice Project of the San Francisco Zen Center. Merrill Collett explains step-by-step how to feed, clean, and take care of a dying person—in a way that benefits both patient and caregiver. The instructions, which include ancient wisdom teachings as well as modern practical nursing methods, include: Mindfulness skills Effective pain treatments Appropriate cooking and feeding techniques Household organization and visitor management Preparation for the moment of death Working with grief

Conversations on Dying

A Palliative-Care Pioneer Faces His Own Death

Author: Phil Dwyer

Publisher: Dundurn

ISBN: 1459731956

Category: Health & Fitness

Page: 216

View: 2658

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The story of the end-of-life experience of a palliative care physician who helped thousands of patients to die well. We all die. Most of us spend the majority of our lives ignoring this uncomfortable truth, but Dr. Larry Librach dedicated his life and his career to helping his patients navigate their final journey. Then, in April 2013, Larry was diagnosed with terminal pancreatic cancer. Unlike the majority of us, Larry knew the death he wanted. He wanted to die at home, surrounded by his family: his wife of forty years, his children, and his grandchildren. He did. He was peaceful and calm at the end. Larry proved that the “good death” isn’t a myth. It can be done, and he showed us how. Ever the teacher, Larry made his last journey a teachable moment on how to die the best death possible, even with a pernicious disease. As hard as it is to guide patients toward dying well, it is far harder to live those precepts day by day as the clock ticks down to one’s own death, but Larry, together with author Phil Dwyer, chronicled his final journey with courage and humour.

Final Gifts

Understanding the Special Awareness, Needs, and Co

Author: Maggie Callanan,Patricia Kelley

Publisher: Simon and Schuster

ISBN: 1451677294

Category: Self-Help

Page: 224

View: 4477

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In this moving and compassionate classic—now updated with new material from the authors—hospice nurses Maggie Callanan and Patricia Kelley share their intimate experiences with patients at the end of life, drawn from more than twenty years’ experience tending the terminally ill. Through their stories we come to appreciate the near-miraculous ways in which the dying communicate their needs, reveal their feelings, and even choreograph their own final moments; we also discover the gifts—of wisdom, faith, and love—that the dying leave for the living to share. Filled with practical advice on responding to the requests of the dying and helping them prepare emotionally and spiritually for death, Final Gifts shows how we can help the dying person live fully to the very end.

With the End in Mind

Dying, Death, and Wisdom in an Age of Denial

Author: Kathryn Mannix

Publisher: Little, Brown

ISBN: 031650453X

Category: Self-Help

Page: 352

View: 429

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For readers of Atul Gawande and Paul Kalanithi, a palliative care doctor's breathtaking stories from 30 years spent caring for the dying. Modern medical technology is allowing us to live longer and fuller lives than ever before. And for the most part, that is good news. But with changes in the way we understand medicine come changes in the way we understand death. Once a familiar and gentle process, death has come to be something from which we shy away, preferring to fight it desperately than to accept its inevitability. Palliative care has a long tradition in Britain, where Dr. Kathryn Mannix has practiced it for 30 years. In this book, she shares beautifully crafted stories from a lifetime of caring for the dying. With insightful meditations on life, death, and the space between them, With the End in Mind describes the possibility of meeting death gently, with forethought and preparation, and shows the unexpected beauty, dignity, and profound humanity of life coming to an end.

The Best Care Possible

A Physician's Quest to Transform Care Through the End of Life

Author: Ira Byock

Publisher: Penguin

ISBN: 1583335129

Category: Medical

Page: 320

View: 2130

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Dr. Byock, one of the foremost palliative care physicians in the country, argues that the way we die represents a national crisis. Though the vast majority of Americans would prefer to die peacefully, at home, many will spend their last days in a disease treatment system ruled by high-tech procedures and a philosophy to 'fight disease and illness at all costs.' Dr. Byock, puts a human face on the issue by telling richly moving stories - at once heartwrenching and uplifting - of people coping with the most difficult moments in their lives. As the pace of health care reform accelerates, he shows what truly excellent care can look like, and how wise and skilful doctors, nurses, and clinical teams can profoundly shape families' experiences of illness, caregiving, and loss. Told through page-turning life-or-death medical drama, The Best Care Possibleis a compelling and passionate meditation on medicine and ethics. It has the power to lead a new national conversation. 'Dr. Byock's mission is to help everyone . . . find meaning, dignity, and peace in these final months of life.' Prevention magazine'In this strikingly important book, Byock presents an agenda for end-of-life care that should serve as an ideal template on which to build out best hopes for the final days of those we love and of ourselves - and a corrective for our society.' Sherwin B. Nuland, MD, Yale Interdisciplinary Center for Bioethics; author of How We Die

Caring for the Dying

The Doula Approach to a Meaningful Death

Author: Henry Fersko-Weiss

Publisher: Conari Press

ISBN: 1633410366

Category: Family & Relationships

Page: 240

View: 5653

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Caring for the Dying describes a whole new way to approach death and dying. It explores how the dying and their families can bring deep meaning and great comfort to the care given at the end of a life. Created by Henry Fersko-Weiss, the end-of-life doula model is adapted from the work of birth doulas and helps the dying to find meaning in their life, express that meaning in powerful and beautiful legacies, and plan for the final days. The approach calls for around-the-clock vigil care, so the dying person and their family have the emotional and spiritual support they need along with guidance on signs and symptoms of dying. It also covers the work of reprocessing a death with the family afterward and the early work of grieving. Emphasis is placed on the space around the dying person and encourages the use of touch, guided imagery, and ritual during the dying process. Throughout the book Fersko-Weiss tells amazing and encouraging stories of the people he has cared for, as well as stories that come from doulas he has trained and worked with over the years. What is unique about this book is the well-conceived and thorough approach it describes to working skillfully with the dying. The guidance provided can help a dying person, their family, and caregivers to transform the dying experience from one of fear and despair into one that is uplifting and even life affirming. You will see death in a new light and gain a different perspective on how to help the dying. It may even change the way you live your life right now.

The Conversation

A Revolutionary Plan for End-of-Life Care

Author: Angelo E. Volandes,Angelo Volandes

Publisher: Bloomsbury Publishing USA

ISBN: 1620408546

Category: Health & Fitness

Page: 240

View: 5801

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Harvard Medical School physician Angelo Volandes offers a solution to traumatic end-of-life care: talking, medicine's oldest and least technological tool in the proverbial black bag.

Oxford Textbook of Palliative Social Work

Author: Terry Altilio MSW, ACSW, LCSW,Shirley Otis-Green MSW, ACSW, LCSW, OSW

Publisher: Oxford University Press

ISBN: 9780199838271

Category: Social Science

Page: 848

View: 3990

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The Oxford Textbook of Palliative Social Work is a comprehensive, evidence-informed text that addresses the needs of professionals who provide interdisciplinary, culturally sensitive, biopsychosocial-spiritual care for patients and families living with life-threatening illness. Social workers from diverse settings will benefit from its international scope and wealth of patient and family narratives. Unique to this scholarly text is its emphasis on the collaborative nature inherent in palliative care. This definitive resource is edited by two leading palliative social work pioneers who bring together an array of international authors who provide clinicians, researchers, policy-makers, and academics with a broad range of content to enrich the guidelines recommended by the National Consensus Project for Quality Palliative Care.

The Arts of Contemplative Care

Pioneering Voices in Buddhist Chaplaincy and Pastoral Work

Author: Cheryl A Giles,Willa B Miller

Publisher: Simon and Schuster

ISBN: 1614290377

Category: Religion

Page: 368

View: 3375

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Powerful and life-affirming, this watershed volume brings together the voices of pioneers in the field of contemplative care--from hospice and hospitals to colleges, prisons, and the military. Illustrating the day-to-day words and actions of pastoral workers, each first-person essay in this collection offers a distillation of the wisdom gained over years of compassionate experience. The stories told here are sure to inspire--whether you are a professional caregiver or simply feel inclined toward guiding, healing, and comforting roles. If you are inspired to read this book, or even one touching story in it, you just might find yourself inspired to change a life.

Life after the Diagnosis

Expert Advice on Living Well with Serious Illness for Patients and Caregivers

Author: Steven Pantilat,Steven Pantilat, M.D.

Publisher: Da Capo Press

ISBN: 0738219541

Category: Family & Relationships

Page: 999

View: 8642

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In Life After the Diagnosis, Dr. Steven Z. Pantilat, a renowned international expert in palliative care, shares innovative approaches for dealing with serious illness, outlines the steps that patients should take, and demystifies the medical system. He makes sense of what doctors say, what they actually mean, and how to get the best information to help make the best medical decisions. Dr. Pantilat covers everything from the first steps after the diagnosis and finding the right caregiving and support, to planning your future so your loved ones don't have to. He offers advice on how to tackle the most difficult treatment decisions and discussions and shows readers how to choose treatments that help more than they hurt, stay consistent with their values and personal goals, and live as well as possible for as long as possible.